PD EDUCATION HOUR

Thank you to all who joined us for any of our PD Education Hours, with live viewings and discussions on select topics pertaining to PD.  If you missed any of them, or would like to see a presentation again, you can watch them at the links below.  We have also posted some handouts and articles for your reading pleasure.

Zoom link to join any upcoming LIVE PD Education Hour:

https://us02web.zoom.us/j/83422548204?pwd=QlM3MnZpSVo3QXNITGFqQzJFa2lDdz09

Meeting ID: 834 2254 8204
Passcode: pep4u

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+14086380968,,83422548204# US (San Jose)
+16699006833,,83422548204# US (San Jose)

 

11/13/20:  The Science of High-Intensity Exercise and Impact on PD

Sponsor:  Davis Phinney Foundation

Presenter:  Meghan Malley, PT, DPT

Duration:  25 mins + Q&A (optional)

Summary:

This webinar has to be one of the best I’ve run across.  It’s a short 25 minutes, but it’s packed with a ton of great information for folks like us that already believe in the benefits of exercise.  As you watch this webinar, I found myself saying things like:  “That’s why Gabi has me doing that?” or “That’s why Aimee/Cathy/Stephanie keeps pushing me.  ”Honestly, if nothing else, this webinar is a testament to the professionalism of our terrific trainers.  You’ll leave this webinar with a renewed commitment to exercise and a better idea of why you’re doing things and what the specific benefits are.  Plus, it’s only 25 minutes long.  You’ll have plenty of time to deal with anything a Friday the 13th can throw at you.  I have included a few written pieces on exercise.  I find the APDA guide to be incredibly useful and comprehensive.

Video link:

The Science of Intense Exercise:  The Victory Summit® Parkinson's Support Symposium

Additional Resources:

 

10/30/20:  What, When, Why & How to Treat Dyskinesia

 

Sponsor:  Davis Phinney Foundation

Presenter:  Dr. Irene Malaty + 3 PWP panelists

Duration:  50 mins + Q&A (optional)

Summary:

I chose this webinar for Session #7 of the PD Education Hour because dyskinesia is relevant to all of us. The panel includes three People with Parkinson’s (PWP) whose insights are terrific.  Along with dyskinesia, the panel discusses other topics relevant to folks like us that live with Parkinson’s 24-7-365.

The Davis Phinney Foundation works on techniques for living well with PD. This video is an excellent example of DPF material to help us learn to live well with PD.  I’ve included some DPF printed material as well.

 

The MJ Fox Foundation focuses on finding therapeutics and cures for PD.  I’ve added some material from the MJFF that clinically describes dyskinesia.  A short MJFF video, along with reading material, is included.

 

Video links:

Webinar Managing and Treating Parkinson's Dyskinesia

Dyskinesia:  Hope on the Horizon

Additional Resources:

 

10/16/20:  Benefits of Trekking/Walking Poles for PWP

Sponsor:  PEP4U + Davis Phinney Foundation for Parkinson’s

Presenter:  Ernie #2 + multiple professionals

Duration:  30 mins + Q&A (optional)

Summary:

 

I recently ran across a short discussion on the benefits of trekking poles for People with Parkinson's (PWP).  It struck a chord with me; I used trekking poles for years when I hiked on challenging trails.  The poles spared my ankles and other joints.  I was able to navigate some dicey sections safely.

It turns out that similar poles are also useful for urban hiking.  They are especially helpful for old folks (like us) with walking issues.

This session included discussions with movement disorder professionals that highlight poles' utility for PWP.  It included a few videos on how to buy and use poles explicitly designed for us.

Zoom Link to the recording:  

https://us02web.zoom.us/rec/share/y7xUASdIwRBitEXd9RT5hYSoSsfO0ewZ6aomWxR7x0UqcF6WqlKj-_NdWoTDTGQ.f8I75o761d5QQV9s?startTime=1602867532000

Additional Resources:

The nine "best" walking poles

How to Nordic walk with urban poles

 

10/2/20: Sleeping Well With Parkinson’s Disease

Sponsor:  MJ Fox Foundation

Presenter:  Multiple professionals

Duration:  50 mins + Q&A (optional)

Summary:

Dave Iverson, my favorite webinar moderator, hosts Michaels Sweet, a PwP, and two neurologists, one from University of Miami and another from Harvard Medical School.  This presentation includes access to a 4-page guide on Sleep and Parkinson’s.

They will cover multiple aspects of PD-related sleep disturbances, including:

1)  Define the sleep disorders associated with PD

2)  How to tell the difference between disease-induced sleep problems and medication side effects

3)  Best practice for treating sleep disorders

4)  New research covering sleep disorders

YouTube Video link:

https://youtu.be/swA6UbRbgjc?t=2

PDF File:  "A Practical Guide on Sleep and Parkinson's Disease".  To download it, click the thumbnail below, then in the resulting new browser window, click the white rectangle icon containing the "down arrow".  This icon is located in the upper right hand gray border.  Once you click this, the document should save to your Downloads folder.

 

9/18/20:  Mindfulness Meditation

Sponsor:  PEP4U

Presenter:  Caryn Sussman

                     Mindful Heart Connection

Length:  40 minutes + Q & A

Summary:  

Caryn is a certified Mindful Meditation Teacher.  She offers both individual and group training and leads on-line meditations every week.  Caryn will show how MM can cultivate more ease, peace, clarity, and enhanced well-being.  Visit Caryn's website to see more of her offerings.

Ernie #2 will offer a brief personal anecdote.  Last week he had two root canals.  Using Caryn’s MM techniques, he nearly fell asleep multiple times during the 90 min procedure and experienced no “dental procedure” anxiety.

 

Caryn will cover several topics, including: 

  1. An overview of MM,

  2. The many benefits of MM,

  3. MM options,

  4. Resources for continuing your exploration of MM

 

Caryn will conduct a brief MM session during this webinar.  Find a comfortable chair, take a break, and enjoy the respite.

Please be sure to invite your support team and family members.  Everyone will enjoy and benefit from this session of the PD Education Hour.

Video Replay Link:  
https://us02web.zoom.us/rec/share/iBPvSkyLCCy2msqluNCqRs0rbMn5fQNvFButJYTrGXLEpXphn49kdPdHcJSeyuIO.EBYUQXQV8VsnVWaE?startTime=1600447990000

 

9/4/20:  Mood Changes -- Anxiety and Depression in PD

Sponsor:  MJ Fox Foundation

Presenter:  Multiple Professionals

Length:  50 minutes + Q & A

Summary:  

Karen Jaffee, a member of the MJFF Patient Council, moderates a discussion of mood changes with two Professors of Psychiatry as well as a PWP.

 

They cover several topics, including:

1) Why mood changes are typical for PWP

2) Differences between anxiety and depression

3) Treatment options

4) New research covering mood in PD

Video Replay Link:  https://www.youtube.com/watch?v=rbqin8qpk0o

 

8/21/20:  Managing the Motor Symptoms in PD

Sponsor:  Parkinson's Foundation

Presenter:  Dr. Sotorios A. Parashos, Minneapolis Clinic of Neurology and Struther's Parkinson's Center

Length:  40 minutes + Q & A

Summary:  

Dr. Parashos explains the physiology associated with muscle control in a clear and simple manner.  He discusses how PD causes the motor symptoms we endure.  He spends a significant amount of time on how we can make simple changes to address freezing, falling, speech, and overall activities of daily living.  He is a big advocate of the LSVT Big approach and exercising.  There is an informative, 25 min. Q&A session after the 40-minute presentation.

Video Replay Link:  https://www.youtube.com/watch?v=ALCJgNoBJGI&feature=youtu.be

 

8/6/20:  The Parkinson's You Don't See:  Cognitive and Non-Motor Symptoms

Sponsor:  Davis Phinney

Presenter:  Joanne Hamilton, Ph.D., ABPP-CN, Advanced Neurobehavioral Health of Southern California


Length:  26 minutes

Summary:  

I chose this for the first session because it addresses symptoms that are very much a part of Parkinson's.  While screening this video, there were numerous instances where I said out loud:  "That's me, for sure."  I came to realize that some of the first symptoms are not visible to others.  Dr. Hamilton includes a critical discussion of how to distinguish symptoms caused by Parkinson's from those caused by medications.  Dr. Hamilton is a very engaging speaker.  Her presentation is a must-see. 

Video Replay Link:  https://www.youtube.com/watch?v=S2LP_5PC9LU

Recap and Discussion:

In our first PD Education Hour, we briefly discussed the difference between Parkinson’s induced cognitive impairment/dementia and Alzheimer’s.  We learned that Parkinson’s dementia does not “look like” Alzheimer’s. With PD dementia, you won’t “forget your loved ones.”  Here is a table showing the differences.  A written article that further discusses this topic has been uploaded to the Education page of this site.

 HOURS OF OPERATION

Class schedules can change periodically so please check our Class Schedule for current information.

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